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	<title>Comments on: Award.. and some rambling.. so much to catch up on..</title>
	<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on</link>
	<description>Share our journey as we blog about life with Autism</description>
	<pubDate>Fri, 05 Dec 2008 01:56:58 +0000</pubDate>
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		<title>By: misha_k</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-867</link>
		<author>misha_k</author>
		<pubDate>Thu, 07 Feb 2008 21:49:47 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-867</guid>
		<description>Congrats on the award!

It's great that Jack has such a wonderful school and great staff around him.  

Good luck with starting a coffee group.  They're wonderful to be in - when you find the right gathering of people.  I say that because I left one group I just wasn't comfortable in. I was in another but it was only short-term.  I'm still looking though.  I'll find a group someday.</description>
		<content:encoded><![CDATA[<p>Congrats on the award!</p>
<p>It&#8217;s great that Jack has such a wonderful school and great staff around him.  </p>
<p>Good luck with starting a coffee group.  They&#8217;re wonderful to be in - when you find the right gathering of people.  I say that because I left one group I just wasn&#8217;t comfortable in. I was in another but it was only short-term.  I&#8217;m still looking though.  I&#8217;ll find a group someday.</p>
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		<title>By: Marla</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-864</link>
		<author>Marla</author>
		<pubDate>Thu, 07 Feb 2008 14:33:32 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-864</guid>
		<description>Wow.  A poisonous snake in your yard.  That would be a trip.  I hope it has moved far far away.  

Congrats on your award.  You certainly deserve it.  Your blog was one of the first blogs I began reading on a regular basis and is a big favorite of mine.  I always love your pictures and enjoy your honest look into life. 

I am glad that you are looking into more support.  I need to be doing the same.  So often we get stuck in the process of doing everything ourselves.  Every time we have tried for support we have been denied so I get so tired of it and I think I gave up.  Maybe I should try again.

I love your idea of a coffee group.  Joe and I facilitated a support group when Maizie was about three until she was about six.  It was quite a great group.  We ended it when we moved to NJ and did not start it up again when we moved back.  In fact I did not tell many of the people that we even moved back.  Yesterday I got a call from one of the old members and I was happy to hear from her but am certainly not sure about restarting a group at this time.  I also do not want to become a support person for people to call all the time. (that sounds terrible)  It does take a lot of energy.  It is great for support but my only warning would be to set clear boundaries early on.  Many parents will begin turning to you for endless support (usually via long telephone conversations).  In some cases, this is great and in others it can become too much to handle as you are trying to find your very own support.  I was bombarded often with phone calls from distraught parents.  It became very time consuming and drained me of much needed energy I needed for my own family.  I was not very good at setting boundaries, as you can tell.

So, if you keep that in mind and really think about how much support you personally want to dish out it could be a fantastic experience for you and your husband.  

The other difficult challenge was that many parents could not find child care for the get togethers.  We had the group chip in money and hired sitters and were able to get a school to let us use their facilities.  But, getting all of the kids together was a huge challenge considering they were a group of very challenging children.  If I had to do it over again I would not offer any child care and encourage people to find support from family or friends to watch their children when they attend.  That will make it impossible for some to attend which is sad.  But, running the whole child care aspect of it was very stressful for us considering some of the children had severe behavioral challenges.

I don't want that to turn you off from doing it.  It is a great experience.  Just think it through and set the boundaries before you begin.  That is what I wish I would have done differently.</description>
		<content:encoded><![CDATA[<p>Wow.  A poisonous snake in your yard.  That would be a trip.  I hope it has moved far far away.  </p>
<p>Congrats on your award.  You certainly deserve it.  Your blog was one of the first blogs I began reading on a regular basis and is a big favorite of mine.  I always love your pictures and enjoy your honest look into life. </p>
<p>I am glad that you are looking into more support.  I need to be doing the same.  So often we get stuck in the process of doing everything ourselves.  Every time we have tried for support we have been denied so I get so tired of it and I think I gave up.  Maybe I should try again.</p>
<p>I love your idea of a coffee group.  Joe and I facilitated a support group when Maizie was about three until she was about six.  It was quite a great group.  We ended it when we moved to NJ and did not start it up again when we moved back.  In fact I did not tell many of the people that we even moved back.  Yesterday I got a call from one of the old members and I was happy to hear from her but am certainly not sure about restarting a group at this time.  I also do not want to become a support person for people to call all the time. (that sounds terrible)  It does take a lot of energy.  It is great for support but my only warning would be to set clear boundaries early on.  Many parents will begin turning to you for endless support (usually via long telephone conversations).  In some cases, this is great and in others it can become too much to handle as you are trying to find your very own support.  I was bombarded often with phone calls from distraught parents.  It became very time consuming and drained me of much needed energy I needed for my own family.  I was not very good at setting boundaries, as you can tell.</p>
<p>So, if you keep that in mind and really think about how much support you personally want to dish out it could be a fantastic experience for you and your husband.  </p>
<p>The other difficult challenge was that many parents could not find child care for the get togethers.  We had the group chip in money and hired sitters and were able to get a school to let us use their facilities.  But, getting all of the kids together was a huge challenge considering they were a group of very challenging children.  If I had to do it over again I would not offer any child care and encourage people to find support from family or friends to watch their children when they attend.  That will make it impossible for some to attend which is sad.  But, running the whole child care aspect of it was very stressful for us considering some of the children had severe behavioral challenges.</p>
<p>I don&#8217;t want that to turn you off from doing it.  It is a great experience.  Just think it through and set the boundaries before you begin.  That is what I wish I would have done differently.</p>
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		<title>By: Barbara Doduk</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-857</link>
		<author>Barbara Doduk</author>
		<pubDate>Wed, 06 Feb 2008 23:15:29 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-857</guid>
		<description>It warms my heart to know that an award I created is causing such love and joy all over the place... my eyes are tearing up thinking about your eyes tearing up! This is the reason I created the award. To spread Love.

B @ The Love Blog
&lt;a href="http://iamlove.blogspot.com" rel="nofollow"&gt;iamlove.blogspot.com&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>It warms my heart to know that an award I created is causing such love and joy all over the place&#8230; my eyes are tearing up thinking about your eyes tearing up! This is the reason I created the award. To spread Love.</p>
<p>B @ The Love Blog<br />
<a href="http://iamlove.blogspot.com" rel="nofollow">iamlove.blogspot.com</a></p>
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		<title>By: Marita</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-850</link>
		<author>Marita</author>
		<pubDate>Wed, 06 Feb 2008 08:58:35 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-850</guid>
		<description>Congrats on the Award you deserve it.

So glad the school situation has been improving.  Good luck with getting something sorted out for lunch times.

A snake - super scary.  I'd be more scared of that than the RedBack we found.  At least the pest control people can spray the house for spiders.  Not much they can do about snakes.</description>
		<content:encoded><![CDATA[<p>Congrats on the Award you deserve it.</p>
<p>So glad the school situation has been improving.  Good luck with getting something sorted out for lunch times.</p>
<p>A snake - super scary.  I&#8217;d be more scared of that than the RedBack we found.  At least the pest control people can spray the house for spiders.  Not much they can do about snakes.</p>
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		<title>By: Laura</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-846</link>
		<author>Laura</author>
		<pubDate>Wed, 06 Feb 2008 00:00:07 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-846</guid>
		<description>Congratulations on your award - you certainly deserved it!  I've really appreciated what you write about here and it's encouraged me and helped me realize that I am not alone in raising a child with ASD - without all the drama of controversies, etc.  So, good for you on spreading the love!   You both would be great to start a support group too!  If I wasn't so far away, I'd be there!

And yikes!  A snake?  I really hope that thing just disappears for you very soon!</description>
		<content:encoded><![CDATA[<p>Congratulations on your award - you certainly deserved it!  I&#8217;ve really appreciated what you write about here and it&#8217;s encouraged me and helped me realize that I am not alone in raising a child with ASD - without all the drama of controversies, etc.  So, good for you on spreading the love!   You both would be great to start a support group too!  If I wasn&#8217;t so far away, I&#8217;d be there!</p>
<p>And yikes!  A snake?  I really hope that thing just disappears for you very soon!</p>
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		<title>By: childlife</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-843</link>
		<author>childlife</author>
		<pubDate>Tue, 05 Feb 2008 22:27:51 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-843</guid>
		<description>Awww - I'm glad the award encouraged you a little!  You're doing such a great job and are such an inspiration to other families.  Hang in there Elissa.  And hope that snake finds a new place to hang out! : P</description>
		<content:encoded><![CDATA[<p>Awww - I&#8217;m glad the award encouraged you a little!  You&#8217;re doing such a great job and are such an inspiration to other families.  Hang in there Elissa.  And hope that snake finds a new place to hang out! : P</p>
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		<title>By: mommy~dearest</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-842</link>
		<author>mommy~dearest</author>
		<pubDate>Tue, 05 Feb 2008 20:48:27 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-842</guid>
		<description>It is so wonderful to hear that Jack's school is so supportive!  I'm having one heckuva time with Jaysen's school.  Reading about your successes really gives me something to hope for.  

Yeah- I'd be freaking about the snake too.</description>
		<content:encoded><![CDATA[<p>It is so wonderful to hear that Jack&#8217;s school is so supportive!  I&#8217;m having one heckuva time with Jaysen&#8217;s school.  Reading about your successes really gives me something to hope for.  </p>
<p>Yeah- I&#8217;d be freaking about the snake too.</p>
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		<title>By: Joy</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-841</link>
		<author>Joy</author>
		<pubDate>Tue, 05 Feb 2008 19:07:48 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-841</guid>
		<description>All sounds great, other than the snake! EEK! Glad Jack is adjusting to school well and the parts that are difficult they are dealing with which is wonderful.</description>
		<content:encoded><![CDATA[<p>All sounds great, other than the snake! EEK! Glad Jack is adjusting to school well and the parts that are difficult they are dealing with which is wonderful.</p>
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		<title>By: Lou</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-839</link>
		<author>Lou</author>
		<pubDate>Tue, 05 Feb 2008 13:54:01 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-839</guid>
		<description>The one real frustration with ASD is that each case is so individual.  Things that work for one won't always work for another just as the effect of ASD on one child can be so radically different from another child that is also ASD.  It turns everything into a moving target.  But keep working at it.  It's so worthwhile when things start to work out.</description>
		<content:encoded><![CDATA[<p>The one real frustration with ASD is that each case is so individual.  Things that work for one won&#8217;t always work for another just as the effect of ASD on one child can be so radically different from another child that is also ASD.  It turns everything into a moving target.  But keep working at it.  It&#8217;s so worthwhile when things start to work out.</p>
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		<title>By: Julie L.</title>
		<link>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-838</link>
		<author>Julie L.</author>
		<pubDate>Tue, 05 Feb 2008 12:34:00 +0000</pubDate>
		<guid>http://managingautism.com/uncategorized/rambling-so-much-to-catch-up-on#comment-838</guid>
		<description>I think you definitely deserve the award. : ) Yes, recess can be heard for our children with ASD. A speech therapist went outside for recess a few times last year to help my guy learn how to play on the playground. Computer time works though. Best wishes in forming the support group. You and Steve will make excellent organizers.</description>
		<content:encoded><![CDATA[<p>I think you definitely deserve the award. : ) Yes, recess can be heard for our children with ASD. A speech therapist went outside for recess a few times last year to help my guy learn how to play on the playground. Computer time works though. Best wishes in forming the support group. You and Steve will make excellent organizers.</p>
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